Les Turner ALS Foundation

Foundation eNews

A Sold Out Success and Video Premier
In case you haven't yet heard, the 30th Hope Through Caring Gala honoring Foundation Board President Ken Hoffman was a smashing success! The event was sold out and raised over $650,000 for the Foundation's patient services and research initiatives. A main highlight of the evening was a video featuring the Rooney family who has lost three family members to ALS, the most recent being John Rooney at the age of 56. The video tells the story of living with and losing a loved one to ALS from the perspectives of John's wife, Meg, and their three sons, Ned, Dan and Jack. For the first time, you can see the public premier of the video. We hope the Rooneys' story inspires you as much as it does us. Watch the video here>>

Developments in Research
In a review published in Nature Reviews Neurology, Dr. P. Hande Ozdinler, of the Les Turner ALS Research and Patient Center at Northwestern Medicine, outlines how upper motor neuron degeneration is an early feature of ALS. Dr. Ozdinler reports that the loss of upper motor neurons in the cortex is critical for disease pathology and may be essential to developing better diagnostic and treatment tools for ALS. Read more about the study here>>

Over 30 Years of ALS Care
When it opened in July 1986, the Lois Insolia ALS Clinic at Northwestern Medicine was one of the first multidisciplinary ALS clinics in the country and the very first in the Chicago area dedicated to the total care and support of people with ALS, their families and their caregivers. Now, Northwestern Medicine Magazine has published an insightful story about the history of the Clinic and the important work it accomplishes. Read the article here>>

March 2017

Upcoming Events

ALS News You Can Use
Sunday, March 19
Rosemont, IL
Register Here

Shamrock Shuffle
Sunday, April 2
Chicago, IL
Register Here

NEALS PALS Webinar: How Professionals Can Help Kids in ALS Families
Given by Laurie Fieldman, LCSW, Les Turner ALS Foundation
Wednesday, April 5
Register Here

Strike Out ALS 5k and
1 Mile Run, Walk & Roll
Tuesday, July 11
Guaranteed Rate Field
Save the Date

ALS Walk for Life
Saturday, September 16
Soldier Field
Save the Date

In Our Thoughts
We offer our sincere condolences to those who have lost a loved one to ALS since our last enewsletter:

Mario DeFrancesco Robert Lewinski William Oglesby

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